But their story hasn’t been fraught with near-constant hospital stays or diagnostic uncertainty. Theirs began with a life-changing event – followed by a quiet acceptance of a new normal. It’s part of what makes their story so relatable.
Their birth changed things, absolutely. But after you’ve seen your child look death in the face and live, everything else seems…doable. For more than 14 years, their family has been doing what they’ve done every day since September 3, 2006: Taking each day as it comes.
Juan and Gustavo were born prematurely at 26 weeks gestation with hydrocephalus, Cerebral Palsy, dislocated bones, slow development, and many other complications.