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Imagine if every day was this much of a struggle:
Wake up every two hours to reposition your body and clear your airway; get up in the morning and have 5-6 medical interventions; pack five bags of everything you’ll need for the day including food, clothes, and daily emergency medical supplies; go out into the world hoping you’re armed against the everyday germs and illness that could send your health into a tailspin; come home and immediately shower and clean your supplies, have at least three more medical interventions, and maybe try to enjoy some downtime despite your exhaustive list of requirements just to stay alive.
Every day.
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